作　　者： (陈威英）; (熊明洲）; (黎明）; (王晓华）; (余关文）; (苏婷）; (郑道城）; (杨斌）;

机构地区： 广东省皮肤病医院,广东广州510030

出　　处： 《华南预防医学》 2017年第4期327-331,共5页

摘　　要： 目的调查广东省麻风院(村)休养员社会支持、自我护理能力和生活质量的现状,并分析前二者与生活质量的相关性。方法随机抽取广东省内8家麻风院(村),应用社会支持评定量表、自我护理能力测定量表和SF-36量表对抽中院(村)内所有休养员进行调查,并采用典型相关分析对变量之间的相关性进行分析。结果本研究共有346名休养员完成调查,平均年龄为(70.9±12.2)岁,以60~80岁年龄组居多,占63.87%(221/346);男性占76.60%(265/346);婚姻状况以未婚为主,占60.69%(210/346),丧失劳动能力者占68.20%(236/346),生活部分自理或不能自理者占59.70%(203/346)。调查对象社会支持得分为(30.45±8.44)分;自我护理能力得分为(98.95±28.17)分,得分处于低、中、高水平者分别占1.45%、72.25%、26.30%;生活质量得分为(52.35±27.16)分,低于常模(P<0.01)。生活质量和社会支持(第一典型相关系数r_1=0.584,P<0.05)、自我护理能力(第一典型相关系数r_4=0.703,P<0.05)存在正相关关系。结论麻风院(村)休养员生活质量较差,各级政府及麻风病防治机构应采取措施提高休养员的社会支持度和自我护理能力,进而提高该群体的生活质量。 Objective To investigate the status of social support, self care ability and quality of life among leprosy convalescents in leprosariums and analyze the correlation relativity between the former two and quality of life. Methods Eight leprosariums were randomly selected in Guangdong Province. All convalescents in the selected leprosariums were interviewed using questionnaires, including social support rating scale （SSRS）, the exercise of self-care agency（ESCA） and short form 36-item questionnaire （SF- 36）. The correlation between variables was performed by canonical correlation analysis. Results A total of 346 convalescents were investigated, with an average age of（ 70.9 ± 12.2 ）years. Of them, 63.87% （221/346） aged 60- 80 years, 76.60% （265/346） were male, 60.69% （210/346） were unmarried, 68. 20% （ 236/346 ） lost their work ability, and 59.70% （ 203/346 ） were partially or totally unable to take care of themselves. The scores in social support, serf-care ability, and quality of life were 30.45 ± 8.44, 98.95 ± 28.17 （ low level 1.45%, middle level 72.25%, high level 26.30% ）, and 52.35 ± 27.16 （ lower than norm, P 〈 0.05 ）, respectively. There were positive correlations between the quality of life and social support （ the first canonical correlation coefficient rl = 0.584, P 〈 0.05 ）, and self-care ability （ the first canonical correlation coefficient r4 = 0. 703, P 〈 0.05 ）. Conclusion Leprosy convalescents in leprosariums had poor quality of life. The governments and the leprosy control institutions at all levels should take measures to improve the convalescents＇ social support, self care ability, and quality of life.

关 键 词： 麻风 社会支持 自我护理 生活质量